Thursday, May 21, 2009

no understanding

I went to an another Doctor appointment today. I hear all the diagnosis in disbelief and do not understand why at 44 years old why I have all these problems. Within the last few years and months, I was diagnosed with vitiligo, rheumatoid arthritis, osteoarthritis of spine and hips, fibromyalgia, L4 and L 5 rupture discs, osteopenia of right hip, and osteoporosis. I live in constant pain. I do not understand, my husband does not understand and my kids do not understand. My husband thinks I need a lot of exercising and I will be alright. I try to exercise and then the next day, I am in bed all day. I am being referred to a physical therapy, so hopefully I can start exercising. I know I need to lose some weight, but I need to exercise more. The doctor's scare me with the High risk of fractures and nerve damage talk. I ask the doctor was all these problems luck of the genetic draw or was it related to the years of steroids I was given as a child due the lung issues I had. I was born premature so that is another issue. The doctor stated it was probably due to all the above. Since My mom died of an autoimmune disorder the genetic thing is a big issue.

I am sick and tired of being in pain. I live on pills and more pills. I am sick and tired of people not understanding. I cannot not plan in advance on things due to I may feel bad that day. My kids do not understand why I have good and bad days. I am also being referred to a Pain doctor to help manage my pain. Here I am a 44 year old with bones of a 78 yo. I just do not understand.

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